Happy Thanksgiving!

It is peaceful here on this day before Thanksgiving. My morning helper has gone home. The cat is curled on the bed and hasn't moved for at least two hours. Ray is dozing in his chair. There's a fire in the fireplace and I'm settled on the couch. To perfect this picture my favorite jazz pianist, Don Shirley, is entertaining us via Pandora. I am grateful for all this and more, including the idea that as a country we have chosen to dedicate at least one day a year to thankfulness.

We often forget to be grateful for the difficulties of life, but from my aging perspective I know that hard times brought the greatest gifts. It was problems, despair, and fear that taught me, that forced me to be honest with myself, that pushed me forward in new directions. I'm thankful for the lessons, the shoves, and the happiness that always followed.

It's that thought that keeps me moving ahead now. It allows me to not be consumed with Ray's illness, and it gives me hope for the country, despite the apparent deliberate deconstruction of the State being delivered by Trump and his minions. Our president lives in an alternate reality, a self-created maelstrom of narcissism, hate, greed, and stupidity, and unfortunately we've all been sucked (or suckered) in there with him.

But experience suggests that in a few generations people will look back on this period as something to be happy about. They'll be grateful to Trump for waking us up; thankful that we started paying attention, and voted, and ran for office, and resisted the worst impulses of the worst president. They'll wonder how we managed to sink so low before we awoke, and they'll vow to never let it happen again. 

And I am thankful that now, in 2017, Americans still have the time, the courage, and the dedication to make my vision true. 

Happy Thanksgiving to all from Ray, the cat, the couch, the fireplace, Don Shirley, and me.



The pin pictured above is one of my favorites. I once admired it on a friend, and when I left my last job she gave it to me. Shannon died a few months ago, but the pin is on my jacket and I think of her every time I see it.

Change is something we all live with. Some welcome it and others dread it, but no matter how we feel about it, it's a powerful motivator. I've always tried to welcome change even when negative, because it carries with it such valuable lessons. For me the word has usually meant new vistas, new friends, new beginnings. Change.

There are other kinds of change of course. There's entropy (brought to us by the second law of thermodynamics) which tells us all things decline, disintegrate, fall apart. Organization decays into chaos, plates break, walls crumble, and where concrete erodes, weeds sprout and flowers bloom. Entropy is everywhere and humans are prime examples. No matter how we fight it, we age, decline, and die. Since I'm writing this on my birthday that idea has a special poignancy. Change.

I have witnessed a great deal of change in the last eight weeks, which is one reason I haven't been here writing. My husband is now on hospice. This alone feels shocking, and the change has brought a bevy of new people into our lives, caregivers of every kind and miscellaneous others. The phone rings far more than it ever has, and my "alone time" has shrunk markedly. Change.

I try not to think ahead to the great change that is coming, but at times I find myself slipping into daydreams, mostly about how nice it will be when the hospital bed, lift, table, and two wheelchairs are removed from our small premises. I regret these thoughts but humans are essentially selfish; I refuse to feel guilty.

In the broader world we are faced with astonishing, even shocking changes that were unimaginable until they weren't. I can do little about that either, except heap praise on those fighting to uphold the norms and laws that we all took for granted before T***p. The pace of change is no longer a stately and steady altering, but a clock warping slide toward dystopia. We can only hang on and try to remember that change is good. It is opportunity, it is possibility, it is life and it is death. We might as well welcome it. Change.

A perfect life

There is smoke in the air again today, so instead of the patio I am comfortably ensconced on the living room couch. Since we've hardly used this room all summer it feels odd and is a distinct reminder that winter, and use of the fireplace, aren't far off. The week ahead promises to be rainy, which adds to the sense of summer's end.

While I write Ray is in the "back room" watching a rerun of a bike race in Spain. Both of us are enjoying this day without plans because the week has been unusually busy. Tuesday it was the bath aide and a sitter, so I could run errands for three hours. Wednesday it was two women to talk about the caregiver study I agreed to participate in (my contribution to science). Thursday brought a speech therapist to check on Ray's swallowing (one of the symptoms of Lewy body). Among other things she suggested thickened water. Ick. Friday was the bath aide again, plus a PT to help with transfers. She watched as I helped Ray move from chair to couch, and said my technique was excellent. I felt like a kid getting an unexpected A.

All this attention to illness is not unexpected but it lays bare how much our life is consumed by it. As Ray grows less able to care for himself I take up the slack, but while I grow more intimately aware of his most basic needs, I understand less and less of his thinking. The two issues are on divergent paths and the distances between them grow daily. Communication suffers, of course, but I have learned to shorten my sentences, to cease sharing complicated topics, to hear silence in answer to questions. Instead of talking to Ray I talk out loud to myself, and sometimes wonder if I too am not losing all sense.

Next week the every-other-week nurse will return, as will the bath aide and the PT—this time to work on car transfers. All bring a whiff of the outside world with them along with their help and conversation. I will be here, chopping wood and carrying water, and living in the now with Ray and the cat. It is not an exciting life, but it is not to be disparaged. It is the perfect life for me, at this moment, now.

Summer's gone

It's Labor Day, the official end of summer. Since this ending always makes me gloomy I've moved to what passes for nature here, our plant bedecked patio, where the air has an orange cast to it. Either the gods have changed their color palette or there's smoke in the air. Since I can't smell it, I'll stay. It's about 80 degrees; a lovely day if you like orange.

I've been on Twitter this morning. The news is of DACA and Korea and floods and fires, and I wonder what it all means—or if it's just coincidence, all this destruction and drama coming at us at once. Like you, I am tired of it, I have enough on my plate and I'd like the universe, or our corner of it, to make this shared now a little quieter please; more placid, please. Less yammering and yelling. Please! Bring us some capable leaders, some ordinary weather. As some senators are fond of saying, "we need a return to regular order."

The orange light and terrible news has not affected our cat. She is currently spread across the love seat, one of several stops in her determined effort to spread her shedding hair onto every comfortable chair. I protest, of course, but she is as oblivious to my words as she is to threats of war.

Ray too, is essentially oblivious. We watch the news together but he forgets it as soon as the subject changes, and his lack of worry and general calmness mirrors the cat's. What they have in common is  their complete attention to now—when they're not sleeping—and confidence that their needs will be met. All will be as it is. Right now.

I am the only one in the household who looks at the calendar and sees events rushing toward us at a dizzying speed. It's a strange responsibility. I understand that now is the only place change happens. Now is where life is lived. But time is a construct built of clocks and calendars and at least one of us has to pay attention. Ray can't and Zoe won't. Summer's gone but there's a lot more now ahead. I guess it's up to me.


Maybe it gets better

My email feed is a litany of need. There are so many causes anxiously urging support; so many people pleading for help; so many demands on my wallet and time. And no matter how often I unsubscribe they keep finding me. I feel like tossing the computer out the window, but instead I send a little money here and a little more there, never satisfied that I'm doing enough.

I long for the days when I opened email and saw messages from friends. Now I just get asks.

This email problem isn't mine alone, and it contributes to ongoing anxiety over the state of our nation, the state Trump's mind, the state of Kim Jong-un's mind, increasing racial tension, climate change, and now the shocking Texas flood.

Stress is the word of the day, and even if we aren't directly involved with the events in Houston, we can't help but feel the pain and loss, albeit to a lesser degree. Watching a video a few days ago of an elderly man being pulled from his flooded home caused me to burst into tears. The power and unexpectedness of that reaction had, I think, less to do with me or the old man, and more to do with the current zeitgeist.

But we can't simply wail about our problems. That old man was being rescued by a fellow citizen, and he's not alone. Hundreds, if not thousands of people have turned to neighbors, friends, and strangers for help and it has gladly been given. Maybe we're not as bad as we think.

This constant churn of email—frustrating as it is—is the result of many people working to make things better. They are protecting our Constitution. They are working to heal the earth and the animals, plants, and wild places that benefit each of us. They are struggling against racism and poverty, or raising money for the victims of Charlottesville. They are in courts saving our water and protecting us from dangerous chemicals. They are stepping up to run for office. I can't recall a time when so many were so active in causes of every kind. Surely this is a good thing.

I believe our thoughts have power. If we can trade our frustration and anxiety for belief and action, maybe we can change the world—at least our own piece of it. Maybe I'll quit seeing all those emails as a problem and instead spend time every morning cheering on the senders as they go about their work. Maybe what it takes for anything to change is simply seeing the problem differently. Maybe we can change the zeitgeist. Maybe it's worth a try.








Processing racism

It's the Monday following the atrocities in Charlottesville, Virginia and I am still trying to process what it means—to me and to the country. Charlottesville is a long way from Oregon, but Oregon has its own history of racial intolerance, so really, we have much in common.

I have been consuming news and Twitter for three days now, and much has been said that is good, even powerful. One phrase I saw over and over again. "This is not who we are." "This is not America."

I find that one distinctly odd, because of course this is who we are. We are a racist culture and we have been throughout our history. Our founders were slave owners. We fought a war to end slavery but white supremacy and white privilege never ceased.

Our current president and many of his staff and cabinet are known racists, yet we elected him, our senators confirmed his cabinet. The white supremacists/Nazis who marched in Charlottesville are outspoken fans of this president, and he has served them well; he has made it easier for them to come out from under their hoods and show us who they are.

I am happy there were people standing up to the KKK and the Nazis in Charlottesville, and I hope people will continue to stand up and speak out. But that alone will not end racism. That will not end intolerance. It will take more than that. It will take accepting who we really are—we are racists. If we're white, we must admit and own white privilege, and deny white supremacy.

Charles M. Blow, a black columnist writing in the New York Times, said today on Twitter, in response to others saying Black people must speak out: "I did not create America's racial caste system. I don't maintain it. I do not benefit from it. People in those categories need to dismantle it . . ." He also said, "Curing racism is not my job." I agree. It's the job of white people, because we put it in place, we allowed it, we turned a blind eye to it.

It will take listening, really listening to people of color to cure racism. And it will require paying attention to politics, to the people we elect and the sometimes hidden messages in their campaigns. We must think and read before we vote. We must change the way we teach history, the way we make laws, and the way we enforce them. Only political will can do this.

Charlottesville showed us nothing new, it just made it easier to see. I think it's possible to overcome this horror, but it will be painful, and slow. And we must begin with this. We must acknowledge who we really are. America is a racist country and those of us who are white all contribute to maintaining that racism. If we can acknowledge that—and I know it's hard—I think we are halfway there.


August breaks

Karen and cousin Kay in summer.

Karen and cousin Kay in summer.

IT'S AUGUST, THAT quintessential summer month when temperatures rise, and sometimes so do tempers. Congress is in recess, the president is on vacation, and the roads are filled with American families seeking new vistas or hoping to escape the turmoil of the last few months.

August always brings to mind the slow, lazy, endless summer days of my childhood, when temperatures hovered in the 90–100 degree range and relief was found at the municipal pool or movie theatre. August was walking with friends to the nearest grocery for a popsicle or games of statue in the twilight. It was skinned knees and sleeping late, and playing jacks on a hot sidewalk.

But at the moment I'm on the patio, where it's a pleasant 79. Ray is asleep in the chair next to me and Zoe is sprawled across the love seat. I hear an airplane passing over, and water splashing into the pond across the road. A little traffic noise in the distance. The quick beat of wings from a hummingbird at the feeder.

This peaceful scene belies the busyness that more often reigns as Ray's needs become more time consuming, which sometimes causes me to hurry unnecessarily, which led to a couple of spectacular spills last week. But first I broke a plate that I liked; one holding memories of France. It was my own fault, and it happened because I was rushing.

The next day I broke a full, unopened liter of Greek olive oil because, in a hurry, I neglected to turn on a light, which would have saved both the oil and the time it took to clean up the mess.

That was followed two days later by a dramatic pattern in brown and black, splashed across the counter and down the cupboard doors. This time I was multitasking, and reaching for something to put away I swept my arm across two drip cones filled with hot water and coffee grounds. Fortunately the cups didn't break and the mess was considerably easier to clean up.

I am, as a result of the last few days, trying to slow down, to remember that it's August, to think of myself as on vacation, with nothing to worry about but where the next meal might come from. Instead of cooking I'll buy food already prepared from the great delis and grocery stores nearby—at least as long as my budget holds out. And I'll find time to take a walk, even if it's just to the road and back. And I'll drink a beer—or two—and refuse to worry about the state of the world or the state of our country.

This August is bringing us two eclipses (lunar and solar) and Mercury retrograde, so things may get rocky, if only because we think they will. But it's still summer. Take a deep breath and remember the good times. If I can do this, so can you.